This NEWS DIGEST has focused upon sexuality and sexuality education for children and youth with disabilities. While the issue of sexuality is often difficult for parents and professionals to discuss with children and youth, it is also one which is highly important to address in an open, frank, and matter-of-fact manner. Yet, sexuality education is not something that is accomplished in a limited number of lessons parents deliver; it is a life-long process of learning about ourselves and growing as social and sexual beings.
Because children and youth with disabilities will mature and one day be adults functioning within the community, they have a right to be fully and accurately informed about what sexuality means, what responsibilities it involves, and what unique pleasures, joys, and pain this aspect to identity can bring. The special needs of individuals with disabilities must be taken into consideration when parents and professionals present information on attitudes, values, behaviors, and facts about social skills and sexuality. The resource lists in each article in this NEWS DIGEST will hopefully help parents and professionals meet the challenge of preparing young people with disabilities to make responsible decisions, form enriching and lasting relationships with others, and experience the full dimensions of what it means to be alive.
Weiner, F. (Ed.). (1986). No apologies. New York: St. Martin's Press.
Note: The quotations from Weiner (1986) appearing throughout this NEWS DIGEST are copyrighted 1986 by Florence Weiner. From the book No Apologies and reprinted with permission from St. Martin's Press, Inc., New York, NY. NICHCY thanks St. Martin's Press for its generous permission to reprint this material.
FYI: Information Resources from NICHCY's Database Publishers: Books and Videos
The publishers listed below are only some of the many that provide information about sexuality and sexuality education. We present this list of names, addresses, and telephone numbers to help readers obtain the resources listed in this NEWS DIGEST.
Note: We have placed an asterisk (*) next to the names of publishers that specialize in producing this type of information. Readers may find it useful to contact these publishers in particular and ask for a catalogue of their products. The catalogues will contain descriptions of pamphlets, books, and videos available, and will include resources not listed in this NEWS DIGEST. Readers can then choose the ones that best fit their interests and needs.
Active Parenting, Inc., 810 Franklin Court, Suite B, Marietta, GA 30067. Telephone: 1-800-825-0060.
ADIS Press - Contact F.A. Davis Company, 1915 Arch Street, Philadelphia, PA 19103-9954. Telephone: (215) 568-2270.
Albert Whitman & Company, 6340 Oakton Street, Morton Grove, IL 60053. Telephone: 1-800-255-7675 or (708) 647-1355.
Alyson Publications, Contact Inbrook Distribution Company, P.O. Box 120470, East Haven, CT 06512. Telephone: 1-800-253-3605. American Academy of Pediatrics
, Committee on Adolescence, Division of Publications, 131 Northwest Point Boulevard, P.O. Box 927, Elk Grove Village, IL 60009-0927. Telephone: 1-800-433-9016.
American Film & Video, 8901 Walden Road, Silver Spring, MD 20901. Telephone: 1-800-78-VIDEO.
American Friends Service Committee, 1501 Cherry Street, Philadelphia, PA 19102. Telephone: (215) 241-7048.
American Guidance Service, Publishers Building, P.O. Box 99, Circle Pines, MN 55014-1796. Telephone: 1-800-328-2560. In MN, call 1-800-247-5053.
Bantam Books, 666 Fifth Avenue, New York, NY 10103. Telephone: 1-800-223-6834.
Center for Early Adolescence, University of North Carolina at Chapel Hill, Suite 211, Carr Mill Mall, Carrboro, NC 27510. Telephone: (919) 966-1148.
Center for Population Options, 1025 Vermont Avenue N.W., Washington, DC 20005. Telephone: (202) 347-5700.
Center on Human Policy, School of Education, Syracuse University, 200 Huntington Hall, 2nd Floor, Syracuse, NY 13244-2340. Telephone: (315) 443-3851.
*Channing L. Bete Company, 200 State Road, South Deerfield, MA 01373. Telephone: (413) 665-7611.
Charles C. Thomas, 2600 S. First Street, Springfield, IL 62794-9265. Telephone: (217) 789-8980.
College-Hill Press - Contact Pro-Ed, 8700 Shoal Creek Boulevard, Austin, TX 78758. Telephone: (512) 451-3246.
Columbia University Press, 136 S. Broadway, Irvington-on-Hudson, NY 10533. Telephone: (914) 591-9111.
Council for Exceptional Children, Division on Mental Retardation, 1920 Association Drive, Reston, VA 22091-1589. Telephone: (703) 620-3660.
Crown Publishers, c/o Harmony Books Division, 201 East 50th Street, New York, NY 10022. Telephone: (212) 751-2600.
Ednick Communications - Contact Pro-Ed, 8700 Shoal Creek Boulevard, Austin, TX 78758. Telephone: (512) 451-3246.
Edwin Mellen Press, P.O. Box 450, Lewiston, NY 14092. Telephone: (716) 754-2788.
Family Life Education Associates, P.O. Box 7466, Richmond, VA 23221. Telephone: (804) 264-5929.
Federation for Children with Special Needs and the Center on Human Policy, the Technical Assistance for Parent Programs (TAPP) Project, 312 Stuart Street, Second Floor, Boston, MA 02116. Telephone: (617) 482-2915.
Gallaudet University, Bookstore, 800 Florida Avenue N.E., B20E, Washington, DC 20002-3695. Telephone: (202) 651-5380.
Grune and Stratton, c/o Prentice-Hall, Attention: Mail Order Sales, 200 Old Tappan Road, Old Tappan, NJ 07675. Telephone: 1-800-223-1360.
Guilford Press, 72 Spring Street, New York, NY 10012. Telephone: 1-800-365-7006.
Harcourt Brace Jovanovich, 465 S. Lincoln Drive, Troy, MO 63379. Telephone: 1-800-543-1918.
Harper Collins, Keystone Industrial Park, Reeves & Monahan, Scranton, PA 18512. Telephone: 1-800-331-3761.
Harrington Park Press, 10 Alice Street, Binghamton, NY 13904-1580. Telephone: 1-800-342-9678.
Harvard University Press, Attention: Customer Service, 79 Garden Street, Cambridge, MA 02138. Telephone: (617) 495-2600.
Haworth Press, 10 Alice Street, Binghamton, NY 13904-1580. Telephone: 1-800-342-9678.
Hazelden, P.O. Box 176, Center City, MN 55012-0176. Telephone: 1-800-328-9000.
Hemisphere Publishing Corporation, 1900 Frost Road, Suite 101, Bristol, PA 19007. Telephone: 1-800-821-8312.
International Diagnostic Services, Inc., P.O. Box 389, Worthington, OH 43085. Telephone: (614) 885-2323.
Interstate Research Associates - Contact NICHCY, P.O. Box 1492, Washington, DC 20013. Telephone: 1-800-695-0285.
*James Stanfield Publishing Company, P.O. Box 41058, Santa Barbara, CA 93140. Telephone: 1-800-421-6534.
Johns Hopkins University Press, 701 West 40th Street, Baltimore, MD 21211. Telephone: 1-800-537-5487.
MacMillan, Front & Brown Streets, Riverside, NJ 08075. Telephone: 1-800-257-5755.
March of Dimes, 1275 Mamaroneck Avenue, White Plaines, NY 10605. Telephone: (914) 428-7100.
National Association of School Psychologists, Publications, 8455 Colesville Road, Silver Spring, MD 20910. Telephone: (301) 608-0500.
National Association of Social Workers
, P.O. Box 92180, Washington, DC 20090-2180. Telephone: 1-800-752-3590.
National Center for Education in Maternal and Child Health, 38th and R Street, N.W., Washington, DC 20057. Telephone: (202) 625-8400.
National Center for Youth with Disabilities, University of Minnesota
, Box 721 - UMHC, Harvard Street at East River Road, Minneapolis, MN 55455. Telephone: 1-800-333-6293.
National Down Syndrome Society, 666 Broadway, New York, NY 10012. Telephone: 1-800-221-4602.
National Federation of the Blind, 1800 Johnson Street, Baltimore, MD 21230. Telephone: (301) 659-9314.
*Network Publishing, Division of ETR Associates, P.O. Box 1830, Santa Cruz, CA 95061-1830. Telephone: (408) 438-4060.
Oregon Health Sciences University, Child Development and Rehabilitation Center, P.O. Box 574, Portland, OR 97207. Telephone: (503) 494-7522.
Paul H. Brookes Publishing Company, P.O. Box 10624, Baltimore, MD 21285-0624. Telephone: 1-800-638-3775.
People Building Institute, 330 Village Circle, Sheldon, IA 51201. Telephone: (712) 324-4873.
Pergamon Press, c/o MacMillan, Front & Brown Streets, Riverside, NJ 08075. Telephone: 1-800-257-5755.
*Planned Parenthood Federation of America, Marketing Department, 810 Seventh Avenue, New York, NY 10036. Telephone: (212) 819-9770. (This is the central headquarters for Planned Parenthood.)
*Planned Parenthood of Alameda/San Francisco, 815 Eddy Street, Suite 300, Attention: Education Department, San Francisco, CA 94109. Telephone: (415) 441-7858.
Planned Parenthood of Cincinnati - The video listed with this publisher is available by contacting the Agency for Instructional Technology, Box A, Bloomington, IN 47402. Telephone: 1-800-457-4509.
Planned Parenthood of Humboldt County, 2316 Harrison Avenue, Eureka, CA 95501. Telephone: (707) 442-5709.
*Planned Parenthood of Minnesota, The Resource Center, 1965 Ford Parkway, St. Paul, MN 55116. Telephone: (612) 698-2401.)
Planned Parenthood of Seattle-King County, Attention: Bookstore, 2211 East Madison, Seattle, WA 98112-5397.
Planned Parenthood of Shasta/Diablo, 1291 Oakland Boulevard, Walnut Creek, CA 94596. Telephone: (510) 935-4066.
Planned Parenthood of Southeastern Pennsylvania, The Resource Center, 1144 Locust Street, Philadelphia, PA 19107. Telephone: (215) 351-5560.
Plenum Publishing, 233 Spring Street, New York, NY 10013-1578. Telephone: 1-800-221-9369.
Pro-Ed, 8700 Shoal Creek Boulevard, Austin, TX 78758. Telephone: (512) 451-3246.
Research Press, 2612 North Mattis Avenue, Champaign, IL 61821. Telephone: (217) 352-3273.
Robert E. Krieger Publishing, P.O. Box 9542, Melbourne, FL 32902-9542. Telephone: (407) 724-9542.
R.R. Bowker, 121 Chanlon Road, New Providence, NJ 07974. Telephone: 1-800-521-8110.
Seal Press, 3131 Western Avenue, No. 410, Seattle, WA 98121-1028. Telephone: (206) 283-7844.
Seattle Rape Relief Crisis Center, 1905 S. Jackson, Seattle, WA. Telephone: (206) 325-5531.
Seattle Rape Relief Developmental Disabilities Project, 1905 S. Jackson, Seattle, WA 98144. Telephone: (206) 325-5531.
*Sex Information and Education Council of the U.S. (SIECUS), 130 West 42nd Street, Suite 350, New York, NY 10003. Telephone: (212) 819-9770.
Simon and Schuster, Order Processing Department, P.O. Box 11071, Des Moines, IA 50336-1071. Telephone: (515) 284-6751.
St. Martin's Press, 175 Fifth Avenue, New York, NY 10010. Telephone: 1-800-221-7945.
St. Paul Ramsey Medical Center-HIHW, 640 Jackson Street, St. Paul, MN 55101. Telephone: (612) 221-3569.
United Cerebral Palsy Associations, Inc., UCP/Lancaster County, 1811 Olde Homestead Lane, P.O. Box 10485, Lancaster, PA 17605-0485. Telephone: (717) 396-7965.
U.S. Department of Health and Human Services - Contact the Superintendent of Documents, U.S. Government Printing Office, Washington, DC 20402.
Vida Publishing, Primrose Lane/Highland Drive, P.O. Box 597, Mountville, PA 17554.
Volcano Press, P.O. Box 270, Volcano, CA 95689. Telephone: (209) 296-3445.
Walker Publishing, 720 Fifth Avenue, New York, NY 10019. Telephone: 1-800-289-25537.
W.W. Norton & Company, c/o National Book Company, 800 Keystone Industrial Park, Scranton, PA 18512-4601. Telephone: 1-800-223-2584.
*Young Adult Institute, 460 West 34th Street, New York, NY 10001. Telephone: (212) 563-7474.
Note: When you call or write for a reprint of a journal article, make sure you give the complete reference (name of author, name of article, name of journal, and its volume and number).
Academic Therapy - Contact Pro-Ed, 8700 Shoal Creek Boulevard, Austin, TX 78758-6897. Telephone: (512) 451-3246. Ask for the journal department.
ASHA - Contact the American Speech-Language-Hearing Association, 10801 Rockville Pike, Rockville, MD 20852. Telephone: (301) 897-5700. Ask for Extension 218.
Churchill Forum - Contact Churchill Center for Learning Disabilities, Inc., 22 East 95th Street, New York, NY 10128. Telephone: (212) 722-0610.
Exceptional Parent - Contact 1170 Commonwealth Avenue, 3rd Floor, Boston, MA 02134-9942. Telephone: (617) 730-5800.
Focal Point - Contact Portland State University, Research and Training Center on Family Support and Children's Mental Health, Regional Research Institute for Human Services, P.O. Box 751, Portland, OR 97207-0751. Telephone: (503) 725-4040.
Journal of Learning Disabilities - Contact Pro-Ed, 8700 Shoal Creek Boulevard, Austin, TX 78758-6897. Telephone: (512) 451-3246. Ask for the journal department.
Journal of Visual Impairment and Blindness - Contact the American Foundation for the Blind, 15 West 16th Street, New York, NY 10011. Telephone: (212) 620-2149. Say that you would like to order a reprint of an article.
New York State Journal of Medicine - Contact the Medical Society of the State of New York, 420 Lakeville Road, Box 5404, Lake Success, NY 11042-1160. Telephone: (516) 488-6100.
Sexuality and Disability - Contact J. S. Canner & Company, Inc., 10 Charles Street, Needham Heights, MA 02194. Telephone: (617) 449-9103.
SIECUS Report - Contact SIECUS, 130 West 42nd Street, Suite 2500, New York, NY 10036. Telephone: (212) 819-9770.
Special Parent/Special Child - Contact Lindell Press, Inc., P.O. Box 462, South Salem, NY 10590.
Teaching Exceptional Children - Contact Council for Exceptional Children, 1920 Association Drive, Reston, VA 22091-1589. Telephone: (703) 620-3660. Ask for Publications Department.
Volta Review - Contact Alexander Graham Bell Association for the Deaf, 3417 Volta Place N.W., Washington, DC 20007. Telephone: (202) 337-5220. Ask for Brooke Rigler, Managing Editor.
The organizations listed below are only a few of the many that provide services and information about sexuality to families and professionals. Additional information may be available from state and local parent groups and local affiliates of many major disability organizations.
When calling or writing an organization, it is always a good idea to be as specific as you can in stating your needs. For example, state the gender and age of your child, the disability he or she has, and any special needs or interests you have in making your request. This helps organizations provide you with information that is truly helpful and on target.
Genetics Counseling Organizations
Alliance of Genetic Support Groups - 1001 22nd Street N.W., Suite 800, Washington, DC 20037. Telephone: 1-800-336-GENE.
The Arc (formerly the Association for Retarded Citizens of the United States), 500 East Border Street, Suite 300, Arlington, TX 76010. Telephone: (817) 261-6003
National Center for Education in Maternal and Child Health - 38th and R Streets N.W., Washington, DC 20057. Telephone: (202) 625-8400.
National Genetics Foundation - 555 West 57th Street, New York, N Y 10019. Telephone: (212) 586-5800.
National Society of Genetic Counselors - Clinical Genetics Center, Children s Hospital of Philadelphia, 34th and Civic Center Boulevard, Philadelphia, PA 19104. Telephone: (215) 596-9802. Other Organizations
American Association of Sex Educators, Counselors, and Therapists (AASECT) - Suite 1717, Chicago, IL 60611-4067. Telephone: (312) 644-0828.
American Foundation for the Blind, 15 West 16th Street, New York, NY 10011. Telephone: 212-620-2000; 800-543-5463.
March of Dimes Birth Defects Foundation - 1275 Mamaroneck Avenue, White Plaines, NY 10605. Telephone: (914) 428-7100.
Hotline: 1-800-342-AIDS; 1-800-243-7889 (TDD);
National Sexually Transmitted Diseases Hotline: 1-800-227-8922.
National Center for Youth with Disabilities - University of Minnesota, Box 721, 420 Delaware Street S.E., Minneapolis, MN 55455. Telephone: 1-800-333-6293 and (612) 626-2825.
National Clearinghouse on Women and Girls with Disabilities - 1144 East 32nd Street, New York, NY 10016. Telephone: (212) 725-1803.
National Federation of Parents and Friends of Lesbians and Gays - 1012 14th Street, N.W., Suite 700, Washington, DC 20005. Telephone: (202) 638-4200.
National Rehabilitation Information Center (NARIC) - 8455 Colesville Road, Suite 935, Silver Spring, MD 20910-3319. Telephone: 1-800-34-NARIC; (301) 588-9284 (Local and TDD).
Networking Project for Disabled Women and Girls - YWCA/NYC, 610 Lexington Avenue, New York, NY 10022. Telephone: (212) 755-2700, ext. 767.
Sex Information and Education Council of the U.S. (SIECUS) - 130 West 42nd Street, Suite 350, New York, NY 10003. Telephone: (212) 819-9770.
NICHCY thanks our Project Officer, Dr. Sara Conlon, at the Office of Special Education
Programs, U.S. Department of Education, for her time in reading and reviewing the many, many drafts of this document. We would also like to express our deep appreciation to Debra W. Haffner, Executive Director, Sex Information and Education Council of the U.S., for her time-consuming and thoughtful review and for the many SIECUS materials she shared with NICHCY. We also extend our thanks to the other reviewers who provided valuable expertise, guidance, and materials: Betty Pendler, Parent Advocate and Lecturer, New York City; and Dr. Sharon Davis, Director of Research and Program Services, The Arc, Arlington, Texas.
Project Director: Carol H. Valdivieso, Ph.D.
Editor: Lisa Kupper
Authors: Lisa Kupper, Lana Ambler, and Carol Valdivieso
This News Digest is made possible through Cooperative Agreement #H030A30003 between the Academy for Educational Development and the Office of Special Education Programs. The contents of this publication do not necessarily reflect the views or policies of the Department of Education, nor does mention of trade names, commercial products or organizations imply endorsement by the U. S. Government.
The Academy for Educational Development, founded in 1961, is an independent, nonprofit service organization committed to addressing human development needs in the United States and throughout the World. In partnership with its clients, the Academy seeks to meet today's social, economic, and environmental challenges through education and human resource development; to apply state-of-the-art education, training, research, technology, management, behavioral analysis, and social marketing techniques to solve problems; and to improve knowledge and skills throughout the world as the most effective means for stimulating growth, reducing poverty, and promoting democratic and humanitarian ideals.