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Children with Disabilities/Special Needs: Resource List

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The following organizations are among many that provide resources for parents and caregivers on children with disabilities/special needs. Inclusion on this list is for information purposes and does not constitute an endorsement by the Clearinghouse or the Children's Bureau.

ARCH National Respite Network and Resource Center (ARCH)
Chapel Hill Training-Outreach Project
800 Eastowne Dr., Suite 105
Chapel Hill, NC 27514 Phone: (919) 490-5577 x 222
Fax: (919) 490-4905
E-mail: Ylayden@chtop.org
Website: http://www.archrespite.org
The mission of the ARCH National Respite Network is to assist and promote the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.

The ARCH National Respite Network includes the National Respite Locator Service, a service to help caregivers and professionals locate respite services in their community,and the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels.

ARCH is a service of the Chapel Hill Training-Outreach Project, Inc. (http://www.chtop.org/).

Administration on Developmental Disabilities (ADD)
U. S. Department of Health and Human Services/ACF
Mail Stop HHH 405 - D
370 L'Enfant Promenade, SW
Washington, DC 20447 Phone: (202) 690-6590
Website: http://www.acf.hhs.gov/programs/add/
The major goal of the Developmental Disabilities Programs of the ADD is to partner with State governments, local communities, and the private sector to ensure that individuals with developmental disabilities and their families participate in the design of -- and have access to -- culturally competent services, support, and other assistance and opportunities that promote independence, productivity, and inclusion in the community. The programs address all facets of the life cycle: diagnosis, early intervention, therapy, education, training, employment, and community living and leisure activities.

Adopt America Network
National Headquarters
1025 N. Reynolds Road
Toledo, OH 43615 Phone: (419) 534-3350
Fax: (419) 534-2995
Toll-Free: (800) 246-1731
E-mail: adoption@adoptamericanetwork.org
Website: http://www.adoptamericanetwork.org/
The Adopt America Network, a private adoption exchange, is supported by donations, grants, and the purchase of services. Their mission is to find permanent and loving adoptive homes for special-needs children who are awaiting adoption.

Association of Administrators of the Interstate Compact on Adoption and Medical Assistance (AAICAMA)
American Public Human Services Association
810 First Street NE
Suite 500
Washington, DC 20002-4267 Phone: (202) 682-0100
Fax: (202) 289-6555
Website: http://aaicama.aphsa.org
The Association of Administrators of the Interstate Compact on Adoption and Medical Assistance facilitates the administration of the ICAMA. The Compact is the legal mechanism by which member States regulate and coordinate the interstate delivery of services to children with special needs who are adopted pursuant to adoption assistance agreements. Along with advocating State participation in the ICAMA, the Association provides technical and legal assistance, education and training, and materials on practice and policy issues.

Association of University Centers on Disabilities (AUCD)
1010 Wayne Avenue
Suite 920
Silver Spring, MD 20910 Phone: (301) 588-8252
Fax: (301) 588-2842
E-mail: kmusheno@aucd.org
Website: http://www.aucd.org/
The Association of University Centers on Disabilities (formerly the American Association of University Affiliated Programs for Persons with Developmental Disabilities) promotes and supports the national interdisciplinary network of university centers on disabilities. The network includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs, and Developmental Disabilities Research Centers (DDRC). Through its members, AUCD serves as a resource for local, State, national, and international agencies, organizations, and policy makers concerned about individuals with developmental and other disabilities and their families.

Centers for Disease Control and Prevention (CDC)
1600 Clifton Road
Atlanta, GA 30333 Phone: (404) 639-3311
(404) 639-3534
800-CDC-INFO
TTY: (888) 232-6348
Toll-Free: (800) 273-TALK (8255)
E-mail: cdcinfo@cdc.gov
Website: http://www.cdc.gov
The Centers for Disease Control and Prevention is the lead Federal agency for protecting the health and safety of people at home and abroad. CDC serves as the national focus for developing and applying disease prevention and control, environmental health, and health promotion and education activities designed to improve the health of people in the United States.

Child Abuse and Neglect Disability Outreach Project
CAN-Do
Arc Riverside
8138 Mar Vista Court
Riverside, CA 92504-4324 Toll-Free: 1-888-818-6298
E-mail: nora@disability-abuse.com
Website: http://disability-abuse.com/cando/index.htm
General Scope: CAN/Do is the Child Abuse and Neglect Disabilities Outreach Project. Under funding from the California Governor's Office on Criminal Justice Planning (OCJP), CAN/Do is seeking to establish Statewide collaboration through meetings of a multi-agency Think Tank, to compile and disseminate "best practices" so that agencies and organizations can succeed in the mission of preventing the abuse of children with disabilities, and to improve data-gathering so that those who work with children with disabilities, and are concerned about child abuse, will know the size and scope of the problem.

Training Specific: One of CAN-Do's objectives is to provide State-of-the-art training. To achieve this goal, the CAN-Do Project is searching to identify the best training technologies on child abuse and children with disabilites. The goal is to create a state-of-the-art training system that can be customized and disseminated Statewide, and later nationwide. For more information about this training resource, see the CAN-Do website at http://disability-abuse.com/cando/abt.htm.

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
PO Box 25173
St. Louis, MO 65801 Phone: (314) 963-5259

Deaf Adoption News Service (DANS) E-mail: berke@erols.com
Website: http://users.erols.com/berke/deafchildren.html
The Deaf Adoption News Service is a special interest group of the World Federation of the Deaf. It is a text-only, free listing service for waiting foreign and domestic deaf and severely hearing-impaired children.

Institute of Applied Research (IAR)
111 North Taylor
St. Louis, MO 63122 Phone: (314) 909-1944
E-mail: iar@iarstl.org
Website: http://www.iarstl.org/
The Institute of Applied Research (IAR) is an independent research and consulting organization that specializes in providing research and technical assistance services to state governments and agencies and other public service and community organizations.

Areas of special expertise include child welfare and child protection, childcare, juvenile delinquency, substance abuse, developmental disabilities, welfare and welfare reform, poverty, employment and training, and issues affecting women and minorities.

Little People of America Adoption Committee (LPA)
5289 NE Elam Young Parkway
Suite F - 700
Hillsboro, OR 97124 Phone: (503) 846-1562
Fax: (503) 846-1590
Toll-Free: (888) LPA-2001
E-mail: info@lpaonline.org
Website: http://www.lpaonline.org/lpa_adoptions.html
The purpose of the Little People of America Adoption Committee is to find a loving home for every dwarf child. The role of LPA is to act as a link between prospective parents and adoption agencies that represent dwarf children. LPA is not an adoption agency, but a referral source only. By outreaching to adoption agencies, doctors, hospitals, geneticists, and others, LPA is are able to locate available dwarf children for adoption and prospective parents who are interested in adopting them.

Maternal and Child Health Bureau (MCHB)
Parklawn Building Room 18-05
5600 Fishers Lane
Rockville, MD 20857 Phone: (301) 443-2170
Fax: (301) 443-1797
E-mail: ctibbs@hrsa.gov
Website: http://www.mchb.hrsa.gov/
The Maternal and Child Health Bureau strives to provide national leadership and to work in partnership with States, communities, private agencies, and families to strengthen the maternal and child health (MCH) infrastructure, assure the availability and use of medical homes, and build knowledge and human resources to assure continued improvement in the health, safety, and well-being of the MCH population. The MCH population includes all America's women, infants, children, adolescents and their families, fathers, and children with special health care needs.

National Adoption Center (NAC)
1500 Walnut Street
Suite 701
Philadelphia, PA 19102 Phone: (215)735-9988
Fax: (215)735-9410
Toll-Free: 800-TO-ADOPT
E-mail: nac@adopt.org
Website: http://www.adopt.org
General Scope: The National Adoption Center expands adoption opportunities for children throughout the United States, particularly children with special needs and from minority cultures.

Training Specific: Through the Learning Center, adoptive parents and prospective adopters can take an online parenting course, The Adoption Roadmap, to expand and enrich their understanding of adoption. The course focuses on parenting skills, especially those needed to raise children with special needs, advocacy strategies to help a family identify and secure services for its child, and an appreciation of adoption as a distinct form of family building. The Learning Center is funded by the Dave Thomas Foundation for Adoption. For additional information, please see http://www.adopt.org/whatwedo/index.html#The%20Learning%20Center.

National Adoption Information Clearinghouse (NAIC)
330 C Street SW
Washington, DC 20447 Phone: (703) 352-3488
Fax: (703) 385-3206
Toll-Free: (888) 251-0078
E-mail: naic@caliber.com
Website: http://naic.acf.hhs.gov
NAIC offers information on all aspects of adoption for professionals, policy makers, and the general public. The Clearinghouse develops and maintains a computerized database of books, journal articles, and other materials on adoption and related topics, conducts database searches, publishes materials on adoption, and gives referrals to related services and experts in the field. NAIC also maintains a database of experts knowledgeable in various areas of adoption practice. NAIC's primary audiences are adoption professionals and adoptive parents and children.

National Child Welfare Resource Center for Adoption
Spaulding for Children
16250 Northland Drive -- Suite 120
Southfield, MI 48075 Phone: (248) 443-0306
Fax: (248) 443-7099
E-mail: nrc@nrcadoption.org
Website: http://www.nrcadoption.org
General Scope:The National Child Welfare Resource Center for Adoption assists States, Tribes, and other Federally funded child welfare agencies improve their ability to ensure the safety, well being, and permanency of abused and neglected children through adoption and post-legal adoption services, program planning, and policy development. The Center, which believes every child is adoptable and every child deserves a permanent family, provides training, consultation, and informational materials for professionals, organizations, and parents. The Center is a service of the Children's Bureau, U.S. Department of Health and Human Services.

Training Specific: Curricula are available on assessment and preparation of children and families for adoption, cultural competency in child welfare, and adoption support and preservation services.

National Clearinghouse on Child Abuse and Neglect Information
330 C Street SW
Washington, DC 20447 Phone: (703) 385-7565
Fax: (703) 385-3206
Toll-Free: (800) FYI-3366
E-mail: nccanch@caliber.com
Website: http://nccanch.acf.hhs.gov
The National Clearinghouse on Child Abuse and Neglect Information, a service of the Children's Bureau, helps professionals locate information on child abuse and neglect and related child welfare issues. Among its resources, the Clearinghouse offers a bibliographic database of child maltreatment and related child welfare materials, summaries of State laws concerned with child abuse and neglect and child welfare, fact sheets, resource lists, bulletins, and other publications. Jointly with the National Adoption Information Clearinghouse (NAIC), the National Clearinghouse on Child Abuse and Neglect Information publishes the Children's Bureau Express, an online digest of news and resources for professionals concerned with child maltreatment, child welfare, and adoption.

National Fathers' Network (NFN)
Kindering Center
16120 NE 8th Street
Bellevue, WA 98008-3937 Phone: (425)747-4004
Fax: (425)747-1069
Website: http://www.fathersnetwork.org
The Fathers Network provides current information and resources to assist all families and care providers involved in the lives of children with special needs.

National Information Center for Children and Youth with Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013-1492 Fax: (202) 884-8441
Toll-Free: (800) 695-0285
E-mail: nichcy@aed.org
Website: http://www.nichcy.org
National Information Center for Children and Youth with Disabilities is a national information and referral center providing information on disabilities and disability-related issues for families, educators, and other professionals. The Center's special focus is children and youth (birth to age 22). Services include personal responses to questions, publications, referrals, database and library searches, and materials in Spanish.

National Organization on Fetal Alcohol Syndrome (NOFAS)
900 17th Street NW
Suite 910
Washington, DC 20006 Phone: (202) 785-4585
Fax: (202) 466-6456
Toll-Free: (800) 663-0327
E-mail: information@nofas.org
Website: http://www.nofas.org
The National Organization on Fetal Alcohol Syndrome is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for those affected by fetal alcohol syndrome/fetal alcohol effect. NOFAS is committed to raising public awareness of fetal alcohol syndrome and to developing and implementing innovative ideas in prevention, intervention, education, and advocacy in communities nationwide. NOFAS also operates a national clearinghouse for regional, State, and local fetal alcohol syndrome organizations.

National Respite Coalition (NRC)
4016 Oxford Street
Annandale, VA 22003 Phone: (703) 256-9578
E-mail: jbkagan@aol.com
Website: http://www.archrespite.org/NRC.htm
The mission of the National Respite Coalition, an initiative of the ARCH National Respite Network, is to secure quality, accessible, planned, and crisis respite services for all families and caregivers who need them to strengthen and stabilize families and enhance child and adult safety. The Coalition works to achieve these goals by preserving and promoting respite in policy and programs at the national, State, and local levels.

Partnership for People with Disabilities

Virginia Commonwealth University (VCU)
700 East Franklin Street, 10th Floor
Richmond, VA 23284 Phone: (804) 828-3876
Fax: (804) 828-0042
TDD: (800) 828-1120
E-mail: jmhall2@vcu.edu
Website: http://www.vcu.edu/partnership/
General Scope: The Partnership for People with Disabilities, formerly known as the Virginia Institute for Developmental Disabilities (VIDD), is recognized by the Federal Administration on Developmental Disabilities as a university center for excellence in developmental disabilities. The Partnership currently operates more than 20 federal and state programs, supporting individuals with disabilities and their families.

Training Specific: In collaboration with seven University Centers for Excellence (UCEs) and five Protection and Advocacy (P&As) Agencies across the nation, theMaltreatment Education for Health Professionals project addresses deficits in the knowledge and skills of health professionals in responding to the maltreatment of individuals with disabilities. This three-year project is developing, field-testing, and disseminating state-of-the-art distance education materials (funded by the Association on Developmental Disabilities and the U.S. Department of Health and Human Services) to help prevent, identify, and report abuse and neglect of persons with disabilities. For more information about this project, see http://www.vcu.edu/partnership/abuse_ed.htm.


Credits: National Clearinghouse on Child Abuse and Neglect Information

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